About UsMISSION STATEMENT We are mothers, and mother-advocates, concerned with the impact of Lyme Disease and its co-infections on pregnant women, children and families. Our mission includes:
- Advocacy and community-building
- Educating the public and health care workers about the dangers of Lyme disease and co-infections on pregnant women, their children, children in general, and its effect on families.
- Increasing awareness of the dangers of Lyme disease and co-infections on pregnant women, their children, children in general, and its effect on families
- Promoting research that advances prevention, diagnosis and treatment
LEADERSHIP: Meet Our Board & Advisory Board
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Holly Ahern Holly Ahern is an award-winning professor of microbiology at the State University of New York (SUNY) Adirondack, where she teaches and mentors students in undergraduate more...
research focused on preserving small lake ecosystems in the Adirondack region. As a result of her family’s personal experience with Lyme disease, Ahern co-founded, and is vice-president of, Lyme Action Network. Ahern has served as the Scientific Advisor for Focus on Lyme since 2014. As a scientist and advocate, she is actively involved in New York State and federal legislative initiatives to improve patient access to care. -
Kristina-Bauer Kristina Bauer is the Director of Texas Lyme Alliance, a charity dedicated to bettering the lives of congenital and pediatric Lyme patients. Kristina has earned severalmore...
certifications in the health and wellness field, and owned a Yoga studio and wellness center for 14 years. She has also worked on several Lyme disease publications as an editor. Kristina is a Lyme patient, advocate, and mom of 4 Congenital Lyme children. She founded the public Facebook page “Disulfiram for Lyme,” and the private group “Disulfiram Experience for Lyme Support group” with over 5,000 members.
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Jane Marke, MD, Co-Founder Dr. Jane Marke is a Board-certified Psychiatrist in private practice in New York City trained in Intensive Short-term Psychotherapy used in the treatment of trauma, PTSD and more...
relationship issues. Dr. Marke has also trained in Internal Medicine. She treats psychiatric problems of the medically ill and has worked extensively with patients who have chronic illness. In 2013, Dr. Marke became board-certified in Complementary and Holistic Medicine, using food, herbs and nutritional supplements to promote health and healing. Receiving her own diagnosis of Lyme Disease and co-infections in 2009, her practice now is largely but not exclusively made up of patients suffering the psychiatric effects of Tick-Borne Disease, including late teens and early adults who have been ill since early childhood. -
Isabel Rose, Chair Isabel Rose is an author, recording artist and public speaker. Having been infected with Lyme disease and several co-infections since early childhood, she is deeply devoted to Lymemore...
disease education and awareness. She is also mother to two Lyme-infected children, one of whom is on the Autism Spectrum and transgender. More information can be found at Isabelrose.com. -
Monica White Monica graduated with a BS in Wildlife Management from the University of New Hampshire in 1992. After moving to Colorado, she worked as a wildlife biologist and wildland firefighter formore...
the United States Forest Service until becoming ill with Lyme disease and multiple co-infections. She is co-founder and President of Colorado Tick-Borne Disease Awareness Association. She also serves on the Public Tick Integrated Pest Management working group, as well as serving as a subcommittee member on the Federal Health & Human Services Tick-Borne Disease Working Group/Disease Vectors, Surveillance and Prevention Subcommittee in 2018, and Babesia & other Tick-Borne Pathogens Subcommittee in 2020. She is a programmatic panel member of the Congressionally Directed Medical Research Program with the hope of contributing to the change needed to combat Lyme and other tick-borne diseases, especially in children. Monica is a mom of two children infected with Lyme disease. Her husband is infected as well. -
Ronald T. Wilson, MD Dr. Ronald Wilson, M.D. has been treating those with chronic and disseminated Lyme Disease and coinfections since 2004. Lyme disease had a devastating effect on his family. Because more...
of this, he has committed himself to improved treatment for those who suffer from Lyme disease. To that end, he has attended every ILADS Conference since 2004, and has had the pleasure of participating in two preceptorships with recognized experts in the diagnosis and treatment of tick-borne diseases. Dr. Wilson specializes in OB/GYN and Lyme practice.
Meet Our Advisory Board
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Sue Faber, RN, BScN Sue Faber, RN, BScN, is the Co-founder and President of LymeHope, a Canadian not-for-profit organization focused on education, public outreach, research, awareness, and advocacy, for Lyme disease. more...
Sue is committed to partnerships with Federal and Provincial governments, academia, research institutions, healthcare colleagues, and industry stakeholders, to collectively identify challenges, knowledge gaps, and fresh opportunities, to examine and develop transformative health policy, best practice guidelines, and research priorities, which are anchored in patient voice, values, and priorities. Sue’s expertise is the literature that exists on maternal-fetal transmission of Lyme and congenital Lyme borreliosis; supporting and powering urgent research initiatives to investigate this alternate mode of transmission with the ultimate goal of opening new doors to ensure that children and families affected are able to access appropriate care, treatment, and support. -
Rosalie Greenberg, MD Rosalie Greenberg, MD, FAPA, DFAACAP is a Board Certified Adult, Child and Adolescent Psychiatrist in private practice in Summit, New Jersey, specializing in the diagnosis and psychopharmacological more...
treatment of pediatric mood disorders, psychiatric symptoms secondary to tick-borne infections and Pediatric Acute-onset Neuropsychiatric Syndromes. Dr. Greenberg is a graduate of Columbia University College of Physicians and Surgeons where she did her adult and child psychiatric training, and had served as an Assistant Professor in Clinical Psychiatry for several years. She has published multiple articles in the medical and lay press and has presented nationally and internationally on childhood mental illness. -
Christina Fisk Christina Fisk, is President of Lyme Action Network, founded in 2009 after her daughter was negatively impacted by the poor CDC standard of care available for Lyme patients. Ms. Fisk, a principle more...
at JIMAPCO, Inc., works closely with members of her local community, as well as with Lyme disease experts and advocates from across the country, to drive change in Lyme disease policy at state and federal levels. She is a founding members of the New York State Coalition on Lyme and Tick-borne Diseases, and participates in advisory capacities on a range of local, state, and national initiatives. -
Bruce Fries, Co-Founder Bruce Fries began his work as an advocate for Lyme patients in 2014 by conducting a series of publicity campaigns focused on exposing the harm caused by the IDSA guidelines for Lyme disease. more...
In 2015, he spearheaded a campaign that ran political-attack-style television advertisements on CNN and Fox News that linked the IDSA guidelines to suffering and death. He also founded the Patient Centered Care Advocacy Group to advocate for research and public policy to improve the federal government’s response to the epidemic of Lyme disease and related tick-borne illnesses. He has worked to expose conflicts of interest, mismanagement and violations of federal laws against preferential treatment by officials associated with CDC’s program for Lyme disease. His most recent work includes producing appropriations report language with directives to improve accountability, transparency and performance of CDC and NIH programs for Lyme disease. -
Monte Skall Monte Skall is the Executive Director of the National Capital Lyme and Tick-Borne Disease Association (NatCapLyme), a non-profit organization dedicated to Lyme and tick-borne disease education, more...
prevention, research and patient support. Bitten by a tick in 1991, it took seven years and over a dozen doctors before Monte was diagnosed and treated. For the last 18 years, she has fought for the rights of Lyme patients; a journey that has made her a nationally recognized leader in the Lyme patient advocacy community. Monte has testified, lobbied and educated at all governmental levels about Lyme and tick-borne diseases and is a frequent invited speaker at area clubs and associations on the topic of Lyme disease awareness, prevention and treatment options. She has been a hospital trained support group facilitator at Johns Hopkins Sibley Memorial Hospital since 2001, helping patients and their families to cope with Lyme and tick-borne diseases.
